Very impressive results for this fairly new drug named Taltz. For most patients, hand and foot psoriasis can be very frustrating. Nothing seems to work for these areas. I know of three medications that are somewhat effective.
However, Taltz is taking no prisoners when it comes to palmoplanter psoriasis which affects the hands a soles of the feet. According to the research, during the 12 week study, 50% of patients cleared 100% (PPASI score).
As a patient Influencer I’m happy to report this information to the psoriasis community. It breaks my heart to see people suffering in this capacity. I feel their pain, because I’ve experienced it.
The best news is that it has a track record for maintaining it’s effectiveness for 60 consecutive weeks. This is pivotal for people with palmoplanter psoriasis. Dr. Mentor is a specialist when it comes to all types of psoriasis.
If you’re newly diagnosed join our support group call Overcoming Psoriasis <<click on hyper-link The recommended dosing for Taltz is an initial 160 milligrams (mg) subcutaneous (SC) injection followed by an 80mg SC injection once every two weeks for 12 weeks, then 80mg every four weeks. Taltz is a little more convenient then other anti-IL-17A medications for psoriasis.
Promising new medication is waiting FDA approval. This will be Janssen’s second interleukin blocker for psoriasis. Janssen’s first medication Stelara was well received by the psoriasis community years ago when it was first introduced. Stelara was later approved for psoriatic arthritis. I’ve heard it may even be indicated for Crohn’s disease in the near future.
My experience with Stelara went extremely well. I was very pleased that my skin and joints responded so well for years. My quality of life went from terrible to terrific with just a few doses of Stelara. This medication blocks the molecules responsible for the debilitating inflammation that is visible on the skin and chronically painful in the joints.
This new medication called GUS for now until it is officially named, targets only one part of the immune system, different from its predecessor which targets IL-12 and IL-23. GUS is proving to be more safe and effective then Humira which has been a long time favorite for the psoriasis community. Patients need choices when it comes to medications for this insidious disease. These medications work in the body until pso/psa flares again causes the patient to seek new treatment. GUS will be the next step in treatment for many.
I’m very thankful medications like these have become available for me and others like me. Unless you live with this disease I think it’s hard to understand how devastating pso/psa can be. When you add the fact that it’s visible, painful, chronic, itchly, flakey, embarrassing, messy, requires many hours of care each day, causes fatigue, life threatening comorbidities, people like me get excited when we learn about new medications like GUS.
#psoriasis #psoriaticarthritis #psa #NPF #chroniclife #spoonie #creekyjoints #GetYourSkinOut #tonic #HealtheVoices #Janssen #Stelara #Gus http://www.prnewswire.com/news-releases/new-phase-3-data-show-significant-efficacy-versus-placebo-and-superiority-of-guselkumab-versus-humira-in-treatment-of-moderate-to-severe-plaque-psoriasis-300337400.html
Happy Psoriatic Arthritis Awareness Day. September 28th is now declared an awareness day dedicated to PSA. Celgene along with the National Psoriasis Foundation have partnered to raise awareness about this often misdiagnosed disease that can cause serious consequences if left untreated. Early diagnosis is key to preventing irreversible damage to the joints.
If you are experiencing fatigue, swelling, stiffness, nail pitting, pain in the lower back, neck or ankles, trouble with flexibility or movement, see your doctor! Listen to Dr. Feldman and Christina in the audio interview to gain insight and educate yourself about this debilitating disease. Thank you for your support and “share” if you care.
Dara Grace Torres(born April 15, 1967) is an American former competitiveswimmerwho is a twelve-time Olympic medalist and former world record-holder in three events. Torres is the first swimmer to represent the United States in fiveOlympic Games(1984, 1988, 1992, 2000 and 2008), and, at age 41, the oldest swimmer to earn a place on the U.S. Olympic team. At the2008 Summer Olympics, she competed in the 50-meterfreestyle, 4×100-metermedley relay, and 4×100-meter freestyle relay, and wonsilver medalsin all three events.
Torres has won twelve Olympic medals (four gold, four silver, four bronze), one of three women with the most Olympic women’s swimming medals. She won five medals at the 2000 Summer Olympics when, at age 33, she was the oldest member of the 2000 U.S. Olympic Swim Team. She has also won at least one medal in each of the five Olympics in which she has competed, making her one of only a handful of Olympians to earn medals in five different Games.
What they didn’t tell you is that Dara Torres did this all and she has Psoriasis. Each day she trained wearing her bathing suit as a business suit. She was subjected to the stares and comments like all of us in the psoriasis community, yet she found the courage to ignore it all and reach for the stars. Her accomplishments are super human. She truly is a Psoriatic Psuperhero. Dara is also the author of two best selling books. She is incredibly gifted and talented.
Over the years she spoke about her psoriasis and the challenges. On August 18th she step it up a notch by sharing it on TV. Celgene launched a campaign #ShowMoreOfYou and their website Show More Of You.(click on the highlighted text) Dara is the spokesperson for the campaign. I was lucky enough to interview her. I thought it went well.
https://youtu.be/69r9YcxUTqg <<<click the link for the interview
I was very excited to even be selected to speak with a Olympic Gold Medalist. I’m so thankful she is helping us raise awareness and to encourage others to accomplish their dreams despite psoriasis and psoriatic arthritis. Our mission is still hard pressed for a cure. Thankfully we have really good medications to fall back upon along the way. Thank you to everyone who made this possible.
If you would like to sponsor our team Overcoming Psoriasis for our Walk here is the link> Www.teamnpf.org/nycwalk All donations are greatly appreciated.
#Celgene #Otezla #spoonie #creekyjoints #GetYourSkinOut #PsAM16
I met Janine in our group Overcoming Psoriasis. Janine has totally transformed her life. Psoriasis has made her a strong individual. She is the definition of a Psoriatic Psuperhero. Read how she gained control of her Psoriasis in her own words.
My name is Janine Price, I am 41 and happily married with a son aged 18 and a daughter of 10.
I am self employed and have been for 14 years and live in the UK.
I was diagnosed with psoriasis at the age of 22 during my 1st pregnancy.
When I first when to my doctor I was told it was chicken pox.
Two weeks later I returned and my usual doctor had returned and I was diagnosed with psoriasis.
Treatment during pregnancy was difficult and it got much worse.
I later tried all the lotions, potions, steroids and natural remedies including old wives tales that included boiling baby carrots and mashing them and leaving myself stained orange on my dry patches of skin.
My parents would always listen to any advice from others and we would always try any soaps or suggestions in hope that something may be suitable and help.
My problems are scalp psoriasis, and plaque psoriasis on my knees, hands, elbows and a few other places.
I have always worked since leaving school and most people I have worked with colleagues that have been understanding of my condition but others made comments and remarks which have been upsetting.
One day I put fuel in my car and went to pay and the cashier said ‘what’s wrong with you, is it contagious?’ and then pulled her hands away and I had to slide the money for payment while she reluctantly touched it.
I always enjoyed swimming, and was keen for my children to develop this life skill at a young age but eventually I gave up taking them swimming locally and enrolled them in swimming lessons as I couldn’t face people staring or asking if I was contagious and sat and watched while my husband took them swimming.
Swimming for me was something that only happened on holidays, and then I would get stares.
During my 3rd pregnancy (sadly I had a miscarriage on my 2nd pregnancy) my psoriasis cleared.
Unfortunately after a few months it reappeared and gradually got worse.
Again, I tried all the lotions and potions. When nothing else worked I was prescribed methotrexate ( a mild form of chemotherapy) but this didn’t work and I suffered side effects including hair loss, headaches and other problems. I stopped treatment.
Being quite run down, I decided I needed to escape to the sunshine – this had always helped in the past, even if it was short term.
We booked a last minute escape to Gran Canaria from the UK.
Our daughter became friends with another girl from the UK, we became friends and stayed in touch.
I have changed my diet and now exercise, my psoriasis is currently under control.
I ran my 1st ever 5k event and now I am training for a half marathon to raise funds for psoriasis research.
I stumbled upon a group on Facebook called overcoming psoriasis and became friends with the founder.
In the 19 years I have suffered with psoriasis I have learned more from this group than I have from anywhere else and would highly recommend anyone suffering themselves or with a friend or family member getting in touch
I would honestly say if you can, improve your diet and do whatever exercise you are able to.
Thanks to Todd Bello, your commitment and hard work is amazing.
You’re welcome Janine. But I can’t take all the credit. Overcoming Psoriasis is ran by an administrative team. I picked these individuals because they have a heart. We all struggle with psoriasis and psoriatic arthritis and we want to make a difference. They watch over our group to make sure it’s a safe and controlled environment. It’s a place to vent and find support. It’s informative and filled with compassionate people. We are unbiased when it comes to treatments. We all want the same thing, a cure, but for now will settle for safe and effective medications. Anecdotal remedies are shared and embraced when everything else has failed. This is an insidious disease that needs to be stopped. Support Research, Support the National Psoriasis Foundation.
While returning from a holiday in Faro, Holly Dillon age 26, was stopped while boarding her return flight home. The boarding attendant was concerned about visible rashes on Holly’s face. Saying it was a “health and safety concern” the attendant asked her boyfriend indirectly.
Little did they know Dillon is an Ambassador for psoriasis sufferers. She has many followers on her site “Get Your Skin Out”. Her campaign is about raising awareness and changing the publics misconceptions about this insidious disease that not only affects the surface of the skin, but also affects the organs and the joints. Dillon points out that psoriasis is a non-contagious autoimmune disease. Her reason for flying was to take in some rays which is very helpful to those of us with this disease.
Dillon, of Peckham UK, was wearing no make-up while traveling home. Partly because the sun reduced her symptoms. She was feeling confident and renewed. That is until the boarding clerk from EasyJet asked her boyfriend about the rash on her face.
She interrupted and said, “Excuse me, you should be asking me directly if you think there is something wrong. He said, It’s a health and safety procedure.” Dillion felt that his reaction was completely unacceptable, rude and unprofessional.
Working with names like Brad Pitt and Jon Bernthal, Dillion is making a name for herself. She launched her campaign on Instagram gaining 1,500 followers within a short time frame.
Hiring a professional photographer named Lewis Khan, she wanted to show her PUVA light treatments publicly. Light therapy for psoriasis is a tedious and time consuming process. It requires patients to travel to their doctor 3x to 4x per week. The cost can add up to more than a car payment each month. Not only that, treatments are temporary at best. Skin can be very painful if over exposed. The light you recieve is UVB, making it much more intense than a tanning salon.
The photographs show how effective light therapy is for psoriasis. And it also shows psoriasis in a positive light. She considers it a art form; the main two reasons why she contacted the photographer.
Psoriasis affects more than 125 million people worldwide. That’s roughly 2% of the population. That number makes it the most prevalent autoimmune disease. It has the highest suicide rate and is linked with heart disease, arthritis, diabetes, cancer, and depression.
Psoriasis is caused when skin cells regenerate too quickly. Celebrity sufferers include Cara Delevingne, Kim Kardashian, LeAnn Rimes, and Cyndi Lauper.
Holly Dillon had her first flare-up at age 14 and was diagnosed with guttate psoriasis, which caused small sores to develop all over her body four years later.
Tonsillitis or Strep Throat is often the trigger for guttate psoriasis. Often the disease can interfere with every aspect of life. Treating the disease requires many sick days and if very severe can be disabling.
“In the last 18 months I have had treatment for six months of that,” Ms Dillon said. “The thing with psoriasis is because it doesn’t have a death sentence at the end, it’s disregarded by the public. But it is chronic. It has a huge impact on people’s lives, on their wellbeing and happiness.”
Get Your Skin Out is another platform to raise awareness about psoriasis. We here at OvercomingPsoriasis.Com applaud Ms Dillion’s efforts to end the misconceptions about this insidious disease.
EasyJet had this to say about the incident.
“As soon as we were made aware this morning, we started an investigation. All of our staff are carefully selected and undergo training to maintain our high level of customer care which may not have been upheld in this occasion. We will be addressing this with the ground staff member involved as we always have high standards to maintain. Our customer team are contacting Ms Dillon to discuss this with her directly”.
Suicide Squad Cara Delevingne model/actress showing off her Psoriasis
She’s been burning the candle at both ends while promoting Suicide Squad – and it seems her busy schedule has finally taken its toll on Cara Delevingne .
While she stunned on the black carpet at Monday’s world premiere in a plunging metallic studded mini-dress, the 23-year-old couldn’t hide a collection of painful-looking red sores all over her body.
With her skin exposed, it was clear to see that the British beauty had attempted to cover the marks with make-up and while they looked slightly faded, they were still evident.
Cara has spoken openly in the past about suffering from stress-induced psoriasis which could explain her sudden outbreak.
Her heavy workload promoting Suicide Squad has seen her travelling across the globe, with late nights, jet lag and stress perhaps causing the skin condition to flare up.
Her psoriasis first came to light during Paris Fashion Week in 2013.
At the time she said: “It only happened during the Fashion Weeks, which are, of course, the worst time of year for me to be covered in scabs. Psoriasis is an auto-immune disease, and I’m sensitive.”
My two cents in response to someone pointing out the way the media refers to her spots as “sores”. And I go on to say,
I agree…plus they make it sound like it can be fixed by using the word “sores.” It’s a autoimmune disease. They need to do their due diligence. I admire Cara for her bravery. But if it becomes more severe like mine I’m sure it will mess with her self-confidence. It’s hard to have self-confidence or self esteem when society is staring at you like a insect. Especially when they make rude comments and you’re in chronic pain all the time. Speak to me when your covered and people are avoiding you at all costs because they think you’re contagious. Until then nobody will understand what it’s LIKE!
Article courtesy of Mirror.uk
#psoriasis #psoriaticarthritis #psa #NPF #chroniclife #spoonie #creekyjoints #PsAM16
I love when people reach out to me and thank me for our support group “OVERCOMING PSORIASIS “. This is what they wrote:
Thank you, I have learned more about the condition and it’s nice to know you are not alone as I had felt before
There are lovely people on the group. I try and contribute where possible and have something that maybe helpful
Keep up the good work
And another person wrote,
I found you by accident. During one of my lowest moments in my 25 year battle. I feel I have done more for myself in the last 6 months than I have the last 2 1/2 decades. I was at a point I was giving up, was willing to just live with it and be what may. You saved my life.
Actually the the support group is ran by several important people who make sure it’s a safe environment to learn. Those people who I love and adore are, Steven Fernandez, Wendy Hurdich Riese, Sonya Feliciano, John Rau, Jennifer Pellegrin, Chris Patey!
Click on the bold letters below to join our group.
So on Monday, May 23, 2016 over 60 health organizations visited the Capitol Building in Albany, NY. We were there to persuade New York lawmakers to pass A.2834-B/S.3419-B, to protect patients from harmful impact of Fail First policies. Lawmakers are urged to join the ranks of states like Connecticut, California &Washington. Give back the authority to the doctor and stop insurers from changing the orginal prescription. This method jeopardizes the patient’s health and is wrong in so many ways.
I was honored to be on the Leadership team which consisted of; Marcy Savage, Dani Askin, Joseph Camardo MD, Bill Sherman, Mary Ruth Buchness MD, Patrick Stone, Glenn Liebman, and Liz Dears. We were scheduled for seven meetings at the Capitol Building which were one right after another from 11:30am to 4:00pm. I was scheduled to meet Senate Majority Leader Flanagan at 12:15pm.
These Bills make sense and they put the patient first. Here are some Fast Facts about Step Therapy.
*Fail First is a tool used by insurers to limit spending on patients’ medications.
*Many plans use Fail First – 54% of plans reported using it for cancer drugs in 2012, up from 36% the previous year.
*Fail First is applied by insurers to drugs used to treat psoriatic and rheumatoid arthritis, multiple sclerosis and elipepsy, and many others.
*Fail First undermines prescribing health care providers’ ability to effectively treat patients, can lower quality of care, lead to set backs and disease progression for patients.
*State policymakers should take action & pass A.2834-B/S.3419-B to increase oversight of insurers’ use of Fail First, establish minimum exceptions rules and ensure transparency in exceptions process.
I was extremely impressed with all the people who supported these bills. I’m hoping these bills make it to the floor and get passed. I know they are strongly opposed by the insurance companies who put cost over care. Note to insurers; our health is worth more then your bottom line.
Yesterday was our first ever Bike Ride on Long Island for psoriasis and psoriatic arthritis awareness. Hosted by the National Psoriasis Foundation with presenting sponsors such as Novartis , Janssen , and AbbVie . These events are informative and entertaining as well as heartwarming. Those of us who struggle with this insidious disease really appreciate all the donations and hard work it takes to bring this to fruition.
So I wanted to share a story about a father and son who drove 4 hours each way to our event. The Dads name is Mike Bozyczko and the sons name is Tim Bozyczko. Mike has both psoriasis and psoriatic arthritis and has been with the NPF for years. In fact, it’s how we met. Mike is dedicated to the cause and volunteers his time to help others that suffer with this misunderstood auto immune disease. I had no idea he would make the trip all the way to the end of the Island from upstate NY. Mike is also an active member of Overcoming Psoriasis . Mike and I will be going to Albany on the 23rd to fight step therapy practices which prevents patients from doctor prescribed medications. Mikes involved like so many of us who want to find a cure for psoriatic disease. Mike was assigned a very important position at our ride being that he had a pick-up truck. Mikes role was to aid riders if they broke down along the route. I’m proud to say Mike is a good friend of mine.
Mike and Tim arrived arrived just around 6am in order for Tim to warm up for his 70 mile journey on his bike. Tim who recently graduated from nursing school is currently looking for a job in his area to apply his degree. Mike and Tim are also scouts. Tim finished the 70 mile journey with ease and is in fantastic shape. He manage to raise over 250 dollars and help Team Overcoming Psoriasis raise close to 8k dollars. When I see parents whose children support them or vice versa it’s such a heart warming experience.
My kids are approaching the age when I was first diagnosed. So helping to finding a cure is my mission not only for them but for future generations.
It meant so much to me to have them come out and volunteer for our event. Michael even made up shirts Team Overcoming Psoriasis and started his own clothing line. Www.wyldclothingcompany.com Michael also graduated college and is working towards his masters. He is currently employed with SUNY SB.
Jacquelyn also Graduated with a degree from Stony Brook University. She to will be finishing her masters.
She also works at the SBU. I’m so proud of them like I’m sure Mike Bozyczko is proud of his son Tim.
We had great weather for this event. It poured the night before and seemed like it was going to be a wash out. However a few hours later and the sun was shining and the whole day seem majestic. Everything seemed to run flawless. But that’s only because of the volunteers seen here Wendy Riese, Brittany Ineson, Mike and Kevin ( Jackie’s boyfriend ). None of this would of been possible if it wasn’t for our CDM Kimberly Schleyer. She was brilliant. Also have many people to thank like Mary Burns, Jeremy Hall, Bill Hall, Kris Bockmier, John Bockmier, Christina, Randy our CEO, Frank Doris and Band Members, Joe Cincotta, Carol Ostrow, Mike Graff, Dr. Lebwohl, Lynn O’Donnell, Steven Fernandez, Dr. Morales, everyone at the NPF, my Facebook and Twitter friends, and most of all my Mom, Phyllis Bello.
We even had three Ducati motorcyclists as route Marshalls thanks to Steven Fernandez and his Ducati motorcycle club.
Music by Frank Doris and his Grand Funk Band