Hand and Nail Psoriasis 

​I met Janine in our group Overcoming Psoriasis.  Janine has totally transformed her life.  Psoriasis has made her a strong individual.  She is the definition of a Psoriatic Psuperhero.  Read how she gained control of her Psoriasis in her own words.

My name is Janine Price, I am 41 and happily married with a son aged 18 and a daughter of 10.

I am self employed and have been for 14 years and live in the UK.

I was diagnosed with psoriasis at the age of 22 during my 1st pregnancy.
When I first when to my doctor I was told it was chicken pox.
Two weeks later I returned and my usual doctor had returned and I was diagnosed with psoriasis.

Treatment during pregnancy was difficult and it got much worse.
I later tried all the lotions, potions, steroids and natural remedies including old wives tales that included boiling baby carrots and mashing them and leaving myself stained orange on my dry patches of skin.
My parents would always listen to any advice from others and we would always try any soaps or suggestions in hope that something may be suitable and help.
My problems are scalp psoriasis, and plaque psoriasis on my knees, hands,  elbows and a few other places.
I have always worked since leaving school and most people I have worked with colleagues that have been understanding of my condition but others made comments and remarks which have been upsetting.
One day I put fuel in my car and went to pay and the cashier said ‘what’s wrong with you, is it contagious?’ and then pulled her hands away and I had to slide the money for payment while she reluctantly touched it.

I always enjoyed swimming, and was keen for my children to develop this life skill at a young age but eventually I gave up taking them swimming locally and enrolled them in swimming lessons as I couldn’t face people staring or asking if I was contagious and sat and watched while my husband took them swimming.
Swimming  for me was something that only happened on holidays, and then I would get stares.

During my 3rd pregnancy (sadly I had a miscarriage on my 2nd pregnancy) my psoriasis cleared.
Unfortunately after a few months it reappeared and gradually got worse.
Again, I tried all the lotions and potions. When nothing else worked I was prescribed methotrexate  ( a mild  form of chemotherapy) but this didn’t work and I suffered side effects including hair loss, headaches and other problems. I stopped treatment.

Being quite run down, I decided I needed to escape to the sunshine – this had always helped in the past, even if it was short term.
We booked a last minute escape to Gran Canaria from the UK.

Our daughter became friends with another girl from the UK, we became friends and stayed in touch.
I have changed my diet and now exercise, my psoriasis is currently under control.


I ran my 1st ever 5k event and now I am training for a half marathon to raise funds for psoriasis research. 
I stumbled upon a group on Facebook called overcoming psoriasis and became friends with the founder.
In the 19 years I have suffered with psoriasis I have learned more from this group than I have from anywhere else and would highly recommend anyone suffering themselves or with a friend or family member getting in touch

I would honestly say if you can, improve your diet and do whatever exercise you are able to.
Thanks to Todd Bello, your commitment and hard work is amazing.
You’re welcome Janine.  But I can’t take all the credit.  Overcoming Psoriasis is ran by an administrative team.  I picked these individuals because they have a heart.  We all struggle with psoriasis and psoriatic arthritis and we want to make a difference.  They watch over our group to make sure it’s a safe and controlled environment.  It’s a place to vent and find support.  It’s informative and filled with compassionate people.  We are unbiased when it comes to treatments. We all want the same thing, a cure, but for now will settle for safe and effective medications.  Anecdotal remedies are shared and embraced when everything else has failed.  This is an insidious disease that needs to be stopped. Support Research, Support the National Psoriasis Foundation.  

#psoriasis #psoriaticarthritis #psa #NPF #psoriasisawarenessmonth #spoonie #creekyjoints #overcomingpsoriasis #chroniclife #health #superimmunity #DrFuhrman #vegan #halfvegan #diet #weightloss #nutrition #jimmyfallon #Amazon #PsAM16 ShowMoreOfYou.com #ShowMoreOfYou #GetYourSkinOut #DaraTorres 

Traveling with Psoriasis 

While boarding a flight Holly Dillon, with actor Jon Bernthal from the Wolf of Wall Street, was stopped due to her visible psoriasis.  

While returning from a holiday in Faro, Holly Dillon age 26, was stopped while boarding her return flight home.  The boarding attendant was concerned about visible rashes on Holly’s face.  Saying it was a “health and safety concern” the attendant asked her boyfriend indirectly. 

Little did they know Dillon is an Ambassador for psoriasis sufferers.  She has many followers on her site “Get Your Skin Out”.  Her campaign is about raising awareness and changing the publics misconceptions about this insidious disease that not only affects the surface of the skin, but also affects the organs and the joints.  Dillon points out that psoriasis is a non-contagious autoimmune disease.   Her reason for flying was to take in some rays which is very helpful to those of us with this disease.

Dillon, of Peckham UK, was wearing no make-up while traveling home.  Partly because the sun reduced her symptoms. She was feeling confident and renewed. That is until the boarding clerk from EasyJet asked her boyfriend about the rash on her face.

She interrupted and said, “Excuse me, you should be asking me directly if you think there is something wrong. He said, It’s a health and safety procedure.” Dillion felt that his reaction was completely unacceptable, rude and unprofessional.  

Working with names like Brad Pitt and Jon Bernthal, Dillion is making a name for herself.  She launched her campaign on Instagram gaining 1,500 followers within a short time frame. 

Hiring a professional photographer named Lewis Khan, she wanted to show her PUVA light treatments publicly.  Light therapy for psoriasis is a tedious and time consuming process.  It requires patients to travel to their doctor 3x to 4x per week.  The cost can add up to more than a car payment each month.  Not only that, treatments are temporary at best. Skin can be very painful if over exposed.  The light you recieve is UVB, making it much more intense than a tanning salon.  

The photographs show how effective light therapy is for psoriasis.   And it also shows psoriasis in a positive light. She considers it a art form; the main two reasons why she contacted the photographer.  

Psoriasis affects more than 125 million people worldwide.  That’s roughly 2% of the population.  That number makes it the most prevalent autoimmune disease.  It has the highest suicide rate and is linked with heart disease, arthritis, diabetes, cancer, and depression.

Psoriasis is caused when skin cells regenerate too quickly.  Celebrity sufferers include Cara Delevingne, Kim Kardashian, LeAnn Rimes, and Cyndi Lauper.

Holly Dillon had her first flare-up at age 14 and was diagnosed with guttate psoriasis, which caused small sores to develop all over her body four years later.

Tonsillitis or Strep Throat is often the trigger for guttate psoriasis.  Often the disease can interfere with every aspect of life. Treating the disease requires many sick days and if very severe can be disabling.

“In the last 18 months I have had treatment for six months of that,” Ms Dillon said. “The thing with psoriasis is because it doesn’t have a death sentence at the end, it’s disregarded by the public. But it is chronic. It has a huge impact on people’s lives, on their wellbeing and happiness.”

Get Your Skin Out is another platform to raise awareness about psoriasis.  We here at OvercomingPsoriasis.Com applaud Ms Dillion’s efforts to end the misconceptions about this insidious disease.

EasyJet had this to say about the incident.   

“As soon as we were made aware this morning, we started an investigation. All of our staff are carefully selected and undergo training to maintain our high level of customer care which may not have been upheld in this occasion. We will be addressing this with the ground staff member involved as we always have high standards to maintain. Our customer team are contacting Ms Dillon to discuss this with her directly”.

Story quotes Courtesy of Evening Standard 

#PsAM16

Cara Delevingne has Psoriasis 

​Suicide Squad Cara Delevingne model/actress showing off her Psoriasis


She’s been burning the candle at both ends while promoting Suicide Squad – and it seems her busy schedule has finally taken its toll on Cara Delevingne .
While she stunned on the black carpet at Monday’s world premiere in a plunging metallic studded mini-dress, the 23-year-old couldn’t hide a collection of painful-looking red sores all over her body.
With her skin exposed, it was clear to see that the British beauty had attempted to cover the marks with make-up and while they looked slightly faded, they were still evident.
Cara has spoken openly in the past about suffering from stress-induced psoriasis which could explain her sudden outbreak.
Her heavy workload promoting Suicide Squad has seen her travelling across the globe, with late nights, jet lag and stress perhaps causing the skin condition to flare up.
Her psoriasis first came to light during Paris Fashion Week in 2013.
At the time she said: “It only happened during the Fashion Weeks, which are, of course, the worst time of year for me to be covered in scabs. Psoriasis is an auto-immune disease, and I’m sensitive.”
My two cents in response to someone pointing out the way the media refers to her spots as “sores”.  And I go on to say, 
I agree…plus they make it sound like it can be fixed by using the word “sores.”  It’s a autoimmune disease.  They need to do their due diligence.  I admire Cara for her bravery.  But if it becomes more severe like mine I’m sure it will mess with her self-confidence.   It’s hard to have self-confidence or self esteem when society is staring at you like a insect. Especially when they make rude comments and you’re in chronic pain all the time.  Speak to me when your covered and people are avoiding you at all costs because they think you’re contagious.   Until then nobody will understand what it’s LIKE!
Article courtesy of Mirror.uk
#psoriasis #psoriaticarthritis #psa #NPF #chroniclife #spoonie #creekyjoints #PsAM16 

Caradelevingne #SuicideSquad #sores #actress #model

Interactive Support Group

I love when people reach out to me and thank me for our support group “OVERCOMING PSORIASIS “.   This is what they wrote:

Thank you, I have learned more about the condition and it’s nice to know you are not alone as I had felt before

There are lovely people on the group. I try and contribute where possible and have something that maybe helpful

Keep up the good work

And another person wrote,

I found you by accident. During one of my lowest moments in my 25 year battle. I feel I have done more for myself in the last 6 months than I have the last 2 1/2 decades. I was at a point I was giving up, was willing to just live with it and be what may. You saved my life.

Actually the the support group is ran by several important people who make sure it’s a safe environment to learn.  Those people who I love and adore are, Steven Fernandez, Wendy Hurdich Riese, Sonya Feliciano, John Rau, Jennifer Pellegrin, Chris Patey!

Click on the bold letters below to join our group.

OVERCOMING PSORIASIS

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Patients First #StepTherapy

So on Monday, May 23, 2016 over 60 health organizations visited the Capitol Building in Albany, NY.  We were there to persuade New York lawmakers to pass A.2834-B/S.3419-B, to protect patients from harmful impact of Fail First policies.  Lawmakers are urged to join the ranks of states like Connecticut, California &Washington.  Give back the authority to the doctor and stop insurers from changing the orginal prescription.  This method jeopardizes the patient’s health and is wrong in so many ways. 

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I was honored to be on the Leadership team which consisted of; Marcy Savage, Dani Askin, Joseph Camardo MD, Bill Sherman, Mary Ruth Buchness MD, Patrick Stone, Glenn Liebman, and Liz Dears.  We were scheduled for seven meetings at the Capitol Building which were one right after another from 11:30am to 4:00pm.  I was scheduled to meet Senate Majority Leader Flanagan at 12:15pm. 

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These Bills make sense and they put the patient first.  Here are some Fast Facts about Step Therapy.

*Fail First is a tool used by insurers to limit spending on patients’ medications.

*Many plans use Fail First – 54% of plans reported using it for cancer drugs in 2012, up from 36% the previous year.

*Fail First is applied by insurers to drugs used to treat psoriatic and rheumatoid arthritis,  multiple sclerosis and elipepsy, and many others.

*Fail First undermines prescribing health care providers’ ability to effectively treat patients, can lower quality of care, lead to set backs and disease progression for patients.

*State policymakers should take action & pass A.2834-B/S.3419-B to increase oversight of insurers’ use of Fail First, establish minimum exceptions rules and ensure transparency in exceptions process.

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I was extremely impressed with all the people who supported these bills.  I’m hoping these bills make it to the floor and get passed.  I know they are strongly opposed by the insurance companies who put cost over care.  Note to insurers; our health is worth more then your bottom line. 

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For more information, please go to:
http://www.steptherapyinfo.com

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#steptherapy #nofailmay #psoriasis #psoriaticarthritis #psa #NPF #chroniclife #spoonie #creekyjoints #Celgene #Janssen #Novartis #Leo #Lilly #Abbvie #wegohealth #everydayhealth

NY Bike Ride for Psoriasis and Psoriatic Arthritis

Yesterday was our first ever Bike Ride on Long Island for psoriasis and psoriatic arthritis awareness.  Hosted by the National Psoriasis Foundation with presenting sponsors such as Novartis , Janssen , and AbbVie .  These events are informative and entertaining as well as heartwarming.  Those of us who struggle with this insidious disease really appreciate all the donations and hard work it takes to bring this to fruition.  

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So I wanted to share a story about a father and son who drove 4 hours each way to our event.  The Dads name is Mike Bozyczko and the sons name is Tim Bozyczko.  Mike has both psoriasis and psoriatic arthritis and has been with the NPF for years.  In fact, it’s how we met.  Mike is dedicated to the cause and volunteers his time to help others that suffer with this misunderstood auto immune disease.  I had no idea he would make the trip all the way to the end of the Island from upstate NY.  Mike is also an active member of Overcoming Psoriasis .  Mike and I will be going to Albany on the 23rd to fight step therapy practices which prevents patients from doctor prescribed medications.  Mikes involved like so many of us who want to find a cure for psoriatic disease.  Mike was assigned a very important position at our ride being that he had a pick-up truck.  Mikes role was to aid riders if they broke down along the route.  I’m proud to say Mike is a good friend of mine.

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Mike and Tim arrived arrived just around 6am in order for Tim to warm up for his 70 mile journey on his bike.  Tim who recently graduated from nursing school is currently looking for a job in his area to apply his degree.  Mike and Tim are also scouts.  Tim finished the 70 mile journey with ease and is in fantastic shape.  He manage to raise over 250 dollars and help Team Overcoming Psoriasis raise close to 8k dollars.  When I see parents whose children support them or vice versa it’s such a heart warming experience.

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My kids are approaching the age when I was first diagnosed.  So helping to finding a cure is my mission not only for them but for future generations. 
It meant so much to me to have them come out and volunteer for our event.  Michael even made up shirts Team Overcoming Psoriasis and started his own clothing line.  Www.wyldclothingcompany.com Michael also graduated college and is working towards his masters.  He is currently employed with SUNY SB.
Jacquelyn also Graduated with a degree from Stony Brook University.   She to will be finishing her masters. 

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She also works at the SBU.   I’m so proud of them like I’m sure Mike Bozyczko is proud of his son Tim. 

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We had great weather for this event.  It poured the night before and seemed like it was going to be a wash out.  However a few hours later and the sun was shining and the whole day seem majestic.  Everything seemed to run flawless.  But that’s only because of the volunteers seen here Wendy Riese,  Brittany Ineson,  Mike and Kevin ( Jackie’s boyfriend ).  None of this would of been possible if it wasn’t for our CDM Kimberly Schleyer.  She was brilliant.  Also have many people to thank like Mary Burns, Jeremy Hall, Bill Hall, Kris Bockmier, John Bockmier, Christina, Randy our CEO, Frank Doris and Band Members, Joe Cincotta, Carol Ostrow, Mike Graff, Dr. Lebwohl, Lynn O’Donnell,  Steven Fernandez, Dr. Morales, everyone at the NPF, my Facebook and Twitter friends, and most of all my Mom, Phyllis Bello. 
We even had three Ducati motorcyclists as route Marshalls thanks to Steven Fernandez and his Ducati motorcycle club. 
Music by Frank Doris and his Grand Funk Band

#psoriasis #psoriaticarthritis #Novartis

Why Apple Cider Vinegar?

What’s all the buzz about Apple Cider Vinegar?  Are all vinegars the same?  Mostly anecdotal, ACV is commonly touted as a remedy for many ailments.  Studies have been conducted around the world trying to prove those claims.  The jury is still out on ACV.  Speaking from experience, I believe it can help you overall.  It’s sold at your local grocery store and I always buy the Braggs brand.  Here are some reasons why you too might want to add it to your salad dressing…

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* What is Acetic Acid that is contained in ACV?

Results of a research study in Japan suggest that acetic acid may help control blood pressure and fat accumulation. Investigators in Europe looked at the influence of sodium acetate and acetic acid on blood glucose and other biological responses to a mixed meal in healthy subjects.

But acetic acid is not vinegar, it is a bacteria found in vinegar that is a byproduct of the fermentation process and as you go along this article, you’ll find out that this bacteria is responsible for the other benefits below.

During the fermentation process, the acetic acid bacteria grow inside the liquid and as the fermentation process goes along it slowly grows to become a nontoxic slime. People call it the “mother”.

There are vinegar manufacturers that remove the “mother” using a filtration process but if you’re thinking of consuming this or adding it to a juice recipe, avoid using distilled vinegar but opt for the raw, unfiltered variety that contains the mother. This ingredient is responsible for the tart flavor and the biting odor of vinegar. Acetic acid content in vinegar varies between 4 to 7% in distilled vinegar and 5 to 6% in wine vinegar. Bragg unfiltered ACV (one of the more popular brands) contains 5.14% of acetic acid.

* Does AVC have Cancer-Fighting Properties?

Cancer is a silent killer in that the symptoms don’t manifest itself until it is in a stage where there is little that you can do to cure it. In 2014 over 1.6 million people in the United States tested positive for cancer and there were over half a million deaths (it is the 4th common cause of death in the USA). Research has shown that vinegar can at least shrink and kill some types of cancer cells.

One study was done in China, where they discovered that vegetable and vinegar consumption reduced the risk of oesophageal cancer. However in a separate study done in Serbia, results showed that vinegar consumption increased bladder cancer 4.4 times. Based on these studies, vinegar is found to have anti-tumor properties thanks to the acetic acid bacteria but may provide various effects depending on the type of cancer.

* Can I use it to clean around the house?

Before any scientific study was done, Hippocrates has been using vinegar to treat wounds over 2,000 years ago and modern research has proven that vinegar can kill some types of bacteria like E. coli and S. aureus. It isn’t as effective as commercial products like Clorox, but it does not have chemicals in it so it is safe to use in washing produce and is also known as a natural food preservative.

* I heard AVC can help lower my LDL.  Is that true?

One of the biggest risk factors of having high cholesterol is it can lead to various heart ailments. Once bad cholesterol clogs the arteries, there is a huge risk of cardiac arrest.

Apple cider vinegar can help lower because it contains chlorogenic acids that help lower LDL or bad cholesterol, preventing it from accumulating and crystalizing in the bloodstream. Take note that the research done was only done to rats which may or may not translate to same results on humans. One study was done on over 70,000 women showed that an increased intake of oil and vinegar salad dressing reduced the risk of ischemic heart disease.

* Will it also help prevent Diabetes?

For those who don’t know postprandial glycemia simply refers to the elevated blood sugar levels that occur after a meal – this is a big factor why pre-diabetics progress to type 2 diabetics.The term pre-diabetes means that an individual has elevated blood glucose levels but not high enough to be considered as type-2 diabetes. If left undiagnosed it can lead to type 2 diabetes in 10 years or less. Researchers from Arizona University found out that drinking vinegar juice that included 20 grams of apple cider vinegar, 49 grams of water and 1 teaspoon of saccharine after a meal (bagel and orange juice) resulted in a 35% decrease.

Another way to lower down postprandial glycemia is walking around for 15 minutes after a meal instead of sitting down like most of us do.

* Will ACV help me with my dental hygiene?

In a test done on 100 teeth that were exposed to the E. faecalis, bacteria had shown that apple cider vinegar was able to reduce bacterial count but not completely remove it. The test was done on teeth extracted through a root canal and not live teeth inside the mouth.

* What about insulin if your a type 2 Diabetic?

In a study done by the American Diabetes Association in 2004, 3 groups of people were given a concoction of 20 grams apple cider vinegar, 40 grams of water and a teaspoon of saccharine and after 2 minutes were given a meal that consisted of a white bagel, orange juice and butter.

These 3 groups include people with type 2 diabetes and non-diabetic individuals who are either insulin sensitive (these are control subjects) or insulin resistant. 29 people in all participated in the study.

The study revealed that apple cider vinegar increased insulin sensitivity in insulin-resistant individuals by 34% and type 2 diabetics by 19% [20]. Dr. Mercola who also cited the study said that the type 2 diabetics who participated in the study improved blood glucose levels by 25% while pre-diabetics had lower blood glucose compared to healthy individuals (control subjects) who participated.

* Can ACV help me with those few extra pounds?

There has been a new study done by Japanese researchers that acetic acid found in vinegar could prevent the accumulation of body fat. One test was done with mice, the other with people.

The test  was done on mice (the latest study): In their study laboratory, scientists fed two groups of mice with a high-fat diet. Afterwards, one group was given acetic acid and one group was not. The mice that were given acetic acid developed less body fat (up to 10%) compared to mice that were not given acetic acid.

Test done on people: 175 obese but healthy people were divided into two groups. Both groups had a similar diet but one group had plain water and the other had some vinegar. At the end of 12 weeks the people who had the vinegar lost an average of 1 to 2 pounds. But whilst vinegar may have properties that can break down fats, nothing beats exercise and eating the right food to really shift any excess weight!

* What are the benefits of adding it to my bath water?

In a world filled with so many toxins, we should all be taking precautionary measures by incorporating protective foods into our diets. We’ve discussed many of the sources of toxins in previous articles so we won’t be overly redundant in this article.

The unique acids in ACV bind to toxins and allow us to release them more effectively.

You can also utilize the medicine of ACV by adding a cup to a hot bath with some epsom salts, to kickstart your lymphatic system into releasing toxins.

* Will it help eliminate Candida?

If you aren’t familiar with candida overgrowth, consider yourself lucky. Candida is a parasitic bacteria which cause yeast overgrowth leading to low energy, poor digestion, yeast infections, canker sores and other uncomfortable symptoms.

Candida overgrowth occurs often when a person has a poor diet, high in refined sugar and carbohydrates, and it can take over when the gut flora compromised by antibiotic use or birth control.

ACV is an effective tool in the kit of someone trying to rid themselves of draining candida. You can also look at lemon water as a possible solution when treating Candida.

It works by helping promote better digestion and an acid/alkaline balance more aligned with promoting healthy bacteria to once again thrive in the gut.

Vinegar has been used since time eternal as a cure for foot fungus and is great for killing molds.

Since yeast is a fungus it makes sense that ACV would help in keeping the parasite at bay, even though to date there hasn’t been any specific analysis of ACV directly as a candida killer.

* How about Lactic Acid build up from working out?

Muscle fatigue can often be a symptom of mineral and electrolyte depletion. To make sure the body has ample electrolyte stores take a Tbs of ACV with water before a workout. The natural pH of our bodies when it’s in balance create an environment where elimination of excess lactic acid in the muscles easily occurs, this stasis also plays a crucial role in oxygenating our bodies during exercise.

* Reduce Sunburns and Insect Stings

If you feel sunburn or bug bite, Apple cider vinegar can help treat this problem. If sunburn occurs, use Apple Cider Vinegar and water in equal proportions and apply to the skin with a cotton fabric to reduce burn. Also, you can relax in shower with moderately hot water and a cup of Apple Cider Vinegar. For pest stings, apply Apple Cider Vinegar straight to the infected area.

* Can it Control Dandruff?

Apple Cider Vinegar is very efficient at fighting fight dandruff. Blend it with equivalent proportions of water and put on your scalp with a cloth or a spraying bottle. Keep on for 60-120 minutes with a bathing cap and then rinse. To achieve maximum results, this should be done at least once or twice a week.

ACV is not intended to replace your doctor’s medications.  Please advice your doctor of any dietary changes.  I am not a doctor.  These are not my claims. I can only speak from my experience. 

Support Research by sponsoring our cycling event
http://www.teamnpf.org/nycycle

#psoriasis #psoriaticarthritis #wegohealth #NPF #skin #itchy #joints #arthritis

The answers here are provided by “The Hearty Soul” They strive to provide the best possible natural health information to improve your life.

DISCLAIMER
This site is designed for educational purposes only and is not engaged in rendering medical advice, legal advice, or professional services. If you feel that you have a medical problem, you should seek the advice of your physician or health care practitioner.

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Motivational Runner with Psoriasis

This next gentleman I’m about to introduce lost over 100 pounds and cleared his psoriasis.   He was featured in the National Psoriasis Foundation “Advance Bulletin”, article by Steve Bieler.  Which raises the question, does poor diet contribute to psoriatic disease?  Many nutritionists and functional medicine practitioners agree “we are what we eat”.  Then why is it that so many patients fail to control their psoriatic disease through diet?  My belief is that the Standard American Diet is loaded with so many preservatives and sweeteners, it’s ironic the acronym is SAD. 

We know psoriatic diseases are genetic in nature.  Paulie McGarrigle Jr. found this out the hard way being that his mother, Carol, had a severe form of the disease.  Carol lost her battle to Hodgkins lymphoma while Paulie was taking care of her.  He was diagnosed in 2006 with Psoriatic Arthritis.  Paulie now is 45 and is 5’11.  In 2012 his psa became so severe he couldn’t open his hands.  His fingers resembled “sausages”, a common indication of PSA.  He also knew his weight of 350 pounds was not helping the situation.  He knew something had to be done.  He thought to himself, “I’m not going out like this.”

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Paulie has the support of his wife and two sons.  He went to see his rheumatologist who put him on a biological TNF inhibitor. He also started eating right and exercising.  While at a gym his friend challenged him to run a 5k.

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Paulie was encouraged with the progress he was making while training.  He was shedding the pounds that he needed in order to put less strain on his organs and joints. 

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As you can see nothing is stopping Paulie from reaching his goal.  It gets to point where we get sick and tired of being sick and tired.  Paulie is a inspiration to the psoriasis and psoriatic community. 

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With determination and hard work anything can be accomplished.   With the support of good doctors and the National Psoriasis Foundation anyone suffering with this disease can improve their quality of life. 

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Paulie is also a member of our support group Overcoming Psoriasis .  《《《 click on the highlighted word to join.  I applaud Paulie for inspiring others be be the best they can be.  It’s very important to see a doctor when you have joint pain.  If you “wait and see” the damage to your joints can be irreversible having psoriatic arthritis.  If you would rather cycle than run, the NPF is having four bike events.  I am co Chair for the NY ride taking place at the Duckwalk Vineyards on May 14.  If you would like to ride or donate the link is http://www.teamNPF.org/nycycle

Thank you for your support. 

#psoriasis #psoriaticarthritis #psa #NPF #skin #itchy #joints #runner

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Scientists pulling the pants down on Psoriasis

Gene mapping uncovers genetic versions that increase chance of psoriasis.
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In an global collaboration, scientists diagnosed 15 new areas in our DNA, called loci, that are related to the improvement of psoriasis. The use of a new studies device referred to as an Immunochip, the organization, inclusive of national Psoriasis basis-funded scientists Dr. James Elder of the college of Michigan and geneticist Anne Bowcock of Washington college in St. Louis, reanalyzed samples from previous genetic research to pick out versions in the genes that could growth psoriasis susceptibility.

This new era allows researchers to offer a greater exact map of the genes than formerly was possible, making it possible to apprehend why some human beings are much more likely to broaden psoriasis than others, and to signify targets for new and higher remedies.

The studies, published in Nature Genetics, elevated on numerous genome-extensive affiliation research—huge research that compare DNA from humans with a disease and those with out a disease to peer if genetic versions are related to the disorder—with the aid of the use of DNA amassed from the countrywide Psoriasis Victor Henschel BioBank and other resources. The discovery elevated the full quantity of genes believed to be concerned in psoriasis to 36. Whilst massive, those genes account for only 22 percentage of people’s psoriasis chance, a lot greater studies is needed to locate all the genes concerned in psoriatic sicknesses.

Additionally, the investigators discovered that these new regions of DNA concerned in psoriasis also overlap with the ones pronounced in Crohn’s sickness and celiac disease, each of which arise in better frequencies in humans with psoriasis. The similarities in those versions might also provide an explanation for the connection among these autoimmune diseases.

Most of the genetic versions located in this observe play a position within the way the body’s immune machine responds, providing new insight into the complicated development of psoriasis and other immune-related diseases. Similarly efforts into understanding the immune system reaction ought to result in the development of promising new remedies for psoriasis.

For better comprehension join the National Psoriasis Foundation

To fund research to help find a Cure, support Overcoming Psoriasis sponsor our efforts to stop this insidious disease. 

*leave a comment please…Thank you for sharing. 

#psoriasis #psoriaticarthritis #wegohealth #NPF #psa #clearskin #spoonie #creekyjoints #healthcentral #creakychats #itchy #chroniclife #health

Are Clinical Trials for YOU?

Maybe your insurance doesn’t cover a particular medication your doctor prescribed.  Maybe you can’t afford the co-pays at your doctor’s office. Maybe you read about a new state-of-the-art medication that is working wonders for our disease state.  Just maybe there is a clinical trial near you and it’s very convenient.  What ever the reason, participating in a Clinical trial isn’t such a bad idea. 

I personally volunteered for four Clinical trials.  Why you ask?  Well one reason was that when I was first diagnosed with psoriasis and psoriatic arthritis there was no biological medications.   I was covered from head to toe in scaly, red, raised, thick, flaking, itchy, painful, burning, embarrassing,  unsightly plaques. 

I knew my quality of life was non-existent.  Everything I was trying didn’t seem to work and I was on my last leg.  Losing the desire to live, I was depressed and the pain was so intense I couldn’t function normally.  People avoided me and I became so insecure I couldn’t speak or think clearly.  Twenty five years ago was a terrible time to be diagnosed with psoriasis.   The only real means of relief for me was the sun and sea.  Also known as climate therapy. 

I became a sun worshipper.  At first you would think hmmm that’s doesn’t sound so bad.  Let me tell you it’s work baking in the 95 degree sun for 6 hours a day.  Plus the possible side effect is skin cancer.  And let’s face it, the sun doesn’t always shine and it’s seasonal.  Then you have the people who look at you and say, “you look nice and tan where have you been?”  I felt like saying to hell and back.  The best available climate therapy is at the Dead Sea in Israel. 

The Dead Sea is a wonderful option but it’s not always affordable.  Especially to a young family of four.  I personally borrowed the money from my parents.  This disease became a financial burden to our family in more ways then one.  I wouldn’t wish this disease on my worst enemy.  Because we became an one income family we went into debt over 50k.  We since then payed all our debt back and managed to keep our heads above water.  We did this with a lot of praying. 

Early on with my disease there wasn’t so much interest like there is today.  I guess we got a break as a community when they discovered cancer patients with psoriasis were clearing up from systemic drugs. Since then they clarified our “skin condition” as an auto-immune disease.  This was exactly what needed to happen for our disease state.  Much more research was being conducted.  The thought of being treated from the inside/out intrigued me. 

One of the first Clinical trials I participated in was the study of engineered tuberculosis.  I traveled to the city which was two hours away for twelve weeks.  I didn’t get reimbursed and it was very inconvenient.  I did not respond to this risky idea of treatment.  

Treatment failure seemed to be just part of the landscape.  Many of the studies at the time were in the city.  I was at wits end.  I was becoming more depressed and less accepted as a human being. What was I to do, I had a wife and family and I was the bread winner.  I continued to research and never gave up.  The Internet was primitive at the time.  There was no social media support groups.  I felt alone.  If it wasn’t for the National Psoriasis Foundation and their quarterly Advance Bulletin, I think I might of given up. 

I read about a church in Scranton PA that had healing capabilities.  I traveled four hours each way.  I got down on my knees and prayed.  Well I walked out of the church still covered with plaques.  But a funny thing happened which I thought at the time was a coincidence.  When I got home I went to the answering machine to listen to my messages.   The voice said they were conducting a clinical trial for an experimental biological medication.  It  gets better then this, it was right up the street from my house.  I have no idea how they got my number still to this day.  They say “coincidences are God’s way of staying anonymous.”

So to make a long story short I went to the doctors office filled out the paperwork and I was told to get my bloodwork done.  They checked everything.  That’s a plus when your participating in a CT.  I was happy cause I didn’t have to lay out a dime.  Because it was a CT there are no guarantees.  The risks were great at the time because this was one of the first biologics for psoriasis.  The drug name was Raptiva.  I gladly signed my life away knowing that it was working on the experimental lab mice.  Suddenly I felt like running on a hamster wheel. 

Well a few shots in and things were getting better.  I was clearing up.  I was elated.  Even the PA was excited for me.   Oh one other thing, when your in a CT for a medication you don’t know if your getting  the medication or a placebo.  It’s a controlled experiment.  It’s one of the drawbacks.  But I had nothing g to lose.  I cleared up totally and was told I would be receiving the drug for free until the trials ended.  I was on it for years.  I was living life once again. 

Then that fear set in that we all think about.  How long is this going to last?  Will this drug effect the other healthy organs in my body?  What are the long term effects?  Will my insurance cover the cost?  Are the risks/rewards worth it?  All these thoughts consumed me.  All I know is that I was clear, it’s time to P A R T Y!

Well that party was short lived because my drug was canceled due to fatal occurrences.  I really didn’t care I was clear and pain free and I wanted to stay that way.  Eventually the unthinkable happened and I was “rebounding” more then the Shack.  It got to the point where I felt like I had one foot in the grave.  But I was determined to live and fight for my life.

I had to try another CT which they had going on.  They said it was just as good.  It was a TNF inhibitor called enbrel.   I failed miserably.  I think it would of worked but I had no “washout” period.  Things were getting tougher as my disease was relentless and was making life a chore.  The social implications of this disease made it impossible to live life without rude comments and stares.  People thought my visible plaques were contagious.   This couldn’t be further from the truth.  Thank you NPF for raising awareness and making society more aware that psoriasis and psoriatic arthritis is not contagious.

So what was I to do, I was extremely depressed and miserable.   Nobody understood me.  I had to do my homework and find a solution.   I went back to the rinse and repeat theory.  Time for another road trip back to Scranton, PA.  Four hours there four hours back.  St. Anns Basilica has a story of its own.  How do I go on living like this? 

Nobody seemed to care and I further isolated myself from society.  When I got back from St. Anns I saw the red light on the answering machine.  The voice was heaven sent.  This time it was for a biological medication called Stelara. Unlike the TNF inhibitor this medication blocked two parts of your immune system interleukin 12 & 23.  This medication was outstanding for me.  It was just FDA approved at the time for psoriasis.   I felt it working on my skin and joints.  This was a Janssen product.  Once again my quality of life return.  I was determined to help my body by eating responsibly and exercising.  

I wanna rap this up because I kept you long enough.  I feel there are more pros then cons for clinical trials.  I think it’s worth the risk if you do your homework about the medication before hand.  If your struggling with the risks then maybe you need to read more to make yourself more comfortable.  

To find out what clinical trials are going on in your area click on this link, clinical trials. You would be doing yourself a great service by joining the NPF and supports this organization.   Educate yourself and make sure you know your not in this alone.  Thank you.  Share and like in order to raise awareness.  Remember to have your pets spade and neutered!

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