This needs to change and we have the people in place to make it happen.  Scenario:
You go to your doctor and he prescribes the dream medication.  He submits it to your insurance company and they denied it stating you have to prescribe xyz drug before using this medication. 
So I’m thinking, why didn’t I just get an appointment with my insurance company?

Sounds like they are diluting the doctors ability to be a doctor.  This is pso wrong in every aspect. Well we now have the Avenue to correct it.  Click the link and let’s keep that decision between you and the doctor!
Www.steptherapyinfo.com

#psoriasis #skin #health #spoonie #npf #skincare #beauty #chronicpain #chronicillness #chroniclife #awesome #creekyjoints #psoriasisproblems #cure #hair #scalppsoriasis #scalp #red #pain #rash #happiness #overcomingpsoriasis #findacure #psoriatic #psa #arthritis

As a child I remember loving the site of newly fallen snow.  However the winter wonder land as an adult with psoriasis and psoriatic arthritis can exasperate symptoms.   Before my diagnosis I loved all winter activities.  These days I cringe thinking about the cold weather.  When I was covered from head to toe I had a tough time regulating my body temperature.  

When I was a fireman/emt I was taught that the body will ultimately protect our vital organs with extreme injury.  If treating a trauma victim we would assist this natural process of the body with a compression suit.  Sort of vassal constriction of the extremities.  My severe psoriasis sort of reminded me of this condition. Even with normal weather my extremities would be freezing.  My health was declining rapidly.  It felt like open abrasions all over my body.  I was losing my battle. 
I had the pleasure to interview Dr. Jackson and a patient Sarah H. from Louisville, Kentucky.   Dr. Jackson was nice enough to explain some of the difficulties psoriasis and psoriatic arthritis patients face during these cold months.  He explains about a relatively new treatment that has been a blessing for those who are prescribed the medication.  
Although this is one of many new medications available,  it’s one that offers treatment for both psoriasis and psoriatic arthritis.   Sarah H. shares her experience on this medication.   I hope you enjoy the interview I conducted. Maybe it’s the answer or control your looking to achieve.   If you haven’t done so already I invite you to our support group Overcoming Psoriasis click the highlighted words for the direct link to the page. 

http://link.brightcove.com/services/player/bcpid82843786001?bckey=AQ~~,AAAAAAHur4I~,diYZRj_HSFq3I0J5u4e4VKgTfmoM3B0i&bctid=4573215442001

#psoriasis #skin #health #spoonie #npf #skincare #beauty #chronicpain #chronicillness #chroniclife #awesome #wpd15 #wegohealth

Do you Diet and Exercise to reduce the impact of your psoriasis and psa?   It might be a good time to start.  I personally try to eat clean and I combine that with portion control.  It’s important to eat foods that are high in nutrition as opposed to empty calories.   With exercise I choose low impact exercises like bike riding and walking.  The less stress on your joints the better.  Swimming is probably the best for low impact exercises.  The idea is to keep moving.  These are lifestyle changes that should be incorporated into your everyday life.  Here’s to a healthier YOU!

#PSORIASIS #skin #health #spoonie #npf #skincare #beauty #chronicpain #chronicillness #chroniclife #awesome #creekyjoints #clearskin #scalppsoriasis #scalp #overcomingpsoriasis #findacure #psoriatic #psa #arthritis #psoriaticarthritis #psoriasisawareness #psoriasisproblems #cure #hair #pain

https://www.yahoo.com/health/6-workout-secrets-that-wont-worsen-psoriasis-165259440.html

One week ago I drove to Philadelphia to experience “brotherly love”. This week I visited “bean town” or as they would say the “City of Champions”. You can’t help the feeling you get when you visit these cities. Both so diverse and rich with American History. As you walk the streets, you immediately notice the architecture of the brilliantly designed buildings. The food and culture is very similar too. People travel from all over the world to these food meccas, to indulge in the savory foods that were made famous by each city. While in Philadelphia, I found myself eating a Philly cheesesteak with two total strangers that traveled from Maryland. In Boston, I enjoyed probably the best New England clam chowder I ever tasted. You have to visit Quincy Market,where you can see live performances from local wannabes.

But this wasn’t the reason I visited these cities. You see, I was there to support our cause with the National Psoriasis Foundation .  Most cities now sponsor our walks for a cure with the NPF.  Saturday was Boston’s day to raise awareness about psoriasis and psoriatic arthritis.  I was most impressed with the lush landscape and the location of the event right on the beach.

While there at the closing ceremony, I was particularly impressed with this one individual that raised money for her sister who has both psoriasis and psoriatic arthritis.  This individual’s name is Melissa Howard.  While talking to her, she explained how her sister asked her to walk for her.  She told me that her feeling was, “That it was the least that she could do.”  She contacted the NPF and made a plan.  She ended-up raising almost ten thousand dollars in just five weeks!
Melissa explained to me that her sister was picked on as a child due to her visible disease.   Her sister later on developed the psoriatic arthritis associated with the disease as well.  She knew she had to get involved!  Some of her concerns about her sister were the lack of effective treatments available.   I encouraged her to research some of the new treatments.  I’m looking forward to combining our efforts next spring at the ride event on Long Island.

I mentioned to Melissa about our support group Overcoming Psoriasis which has some of the most compassionate and helpful members.   Melissa is the type of person who has compassion for individuals who suffer with difficult diseases.  She explained her own situation; that she was hit by a car and had several corrective surgeries. Melissa is my Psuperhero for putting others first.  Thank you Melissa Howard, we need more people like you in the world!

Philadelphia Freedom was the song playing in my mind as I was walking through the Philly Zoo for the National Psoriasis Foundation .  What a great way to enjoy the Zoo and help fund research that may one day produce a cure.  After twenty four years of having psoriasis and psoriatic arthritis it’s so rewarding to see people come out and walk for our cause.

Janssen Pharmaceuticals raised the most money for this event.  Team Janssen has always been there to support the psoriasis community.  I appreciate their hard work and dedication to our disease state.  This company is so generous and pso compassionate about the people of the psoriasis community.
I remember reading an article in the psoriasis Advance Bulletin.  The article was discussing new products in the pipeline.  Janssen was conducting a trial on their new medication  (at the time) Stelara .   The medication was a biological medication that blocks interlukin 12 & 23.  Research showed that these were involved with the inflammation that causes the autoimmune system to overreact and produce skin cells 10 times faster then normal.  And that’s the visual effects of the disease.  The medication also prevents further damage to the joints and organs by stopping the inflammation that’s going on in the body.  I’m so grateful to Janssen and their employees because Stelara improved my quality of life for 5 years.  I was totally covered and pso miserable.  Everything hurt and there was no relief from anything I was trying at the time, until Stelara.

Stelara did the trick for me as you can see from the pictures.  This disease is nasty.
Janssen ( Johnson & Johnson )  also has a app for your phone to donate a picture.  From now until the end of the year they will donate one dollar for every photo submitted up to $25,000.00.  Www.donateaphoto.com everyday and take part in funding research.
Janssen is also in the process if developing a new Biological medication.  The medical name for the drug is Guselkumab .  I attached an article that explains the new drug, just click on the highlighted medical name. Janssen also has a website designed for patients.  It’s called Are You Serious.

I applaud Team Janssen for their continuous effort to improve patients quality of life.

#psoriasis #skin #spoonie #npf #health #beauty #psoriasisproblems #psa #janssenus #Stelara #psoriaticarthritis #psoriasisawareness #psoriasisproblems #cure #J&J #pharma #medication #il-12 #Wegohealth