My name is Todd Bello and I’m from New York. I was diagnosed with psoriasis at the age of 28. Unfortunately psoriasis is a chronic autoimmune disease and there is no cure. One misconception about psoriasis is that it is “communicable”. Because psoriasis is visible and looks similar to poison ivy, people may feel concerned they can “catch” the disease. My message and the message from the entire psoriasis community is that psoriasis is not contagious.
My psoriasis started with a small red spot on my scalp that wouldn’t go away. I went to a dermatologist who confirmed it was psoriasis. I never even heard of psoriasis before that day. I was very concerned. Since then I did a lot of research and I found out there is no cure and it’s a chronic autoimmune disease. I’ve tried so many treatments.
I’ve been in four double-blind studies. I signed up for these studies because nothing at the time was working. My psoriasis eventually covered me from head to toe. I later on developed psoriatic arthritis as determined from a rheumatologist.
I’ve tried everything imaginable including photo therapy, the Dead Sea, Skin Cap, Acupuncture, Herbal remedies, Dr. Pagano, Tanning, Raptiva, Embrel, Engineered Tuberculosis Injections, Gluten-Free, Diets, Topicals, Exercise, Hot Yoga, Healing Masses, Steam Baths, Sulfur Baths, Epsom Salt, Spring Water, Florida Natural Spring Soaks, Steam Rooms, Saunas, Tanning Booth, Chiropractic Adjustments, High Colonics, Dovonex, Talconex, Sulfasalazine, Coal Tar, Florida Sun, Aleve, Cortisone Injections etc. I turned 55 this year and I’m still determined to help find a cure.
I have two wonderful children that love and support me. I have a great network of friends through the National Psoriasis Foundation. Because this is a chronic illness I fight it each and everyday. I decided volunteer my time and to help others by raising awareness. This disease knock the crap out of me and I want to prevent that from happening to others. I’m glad that my Cosentyx injections are keeping both my psoriasis and psoriatic arthritis in check. I’ve been on Cosentyx for over 2 years now and it’s extremely safe and effective.
I’m excited about all the medical break throughs for our disease state. I’m also very thankful to the National Psoriasis Foundation whose mission is to raise funds for resarch. Many pharmaceuticals companies are investing time and money for better solutions. When I was first diagnosed the only treatments available were coal tar, topical cortisone, methotrexate, light box, puva, and cyclosporine. I voluntarily signed up to participate in four clinical trials because nothing was working. The new biological medications target specific pathways of the immune system leaving the rest of immune system intact. There is a new drug in the pipeline that blocks IL-23. I heard the results are outstanding. These treatments are available to patients with moderate to severe psoriasis.
I enjoy helping others so I started a support group called Overcoming Psoriasis. The group offers advice and emotional support and is very informative. If you have psoriasis or psoriatic arthritis please consider joining. Thank you for reading.
We will be having a cycling event on Saturday May 13th. I would love to beat last year’s numbers. My Goal this year is to raise 10k. I need sponsor’s and cyclist. The National Psoriasis Foundation is rated among the best charities as per consumer reports. Please email me if interested firstname.lastname@example.org thank you for your consideration.
#psoriasis #psoriaticarthritis #psa #Janssen #NPF #Novartis #Lilly #Amgen #Abbvie #Celgene #Cyclists #Bikeshops #plaque
6 thoughts on “Smiling in the face of adversity”
Hi, Todd! Great post–and so informative. Autoimmune diseases are so frustrating! I have RA, not psoriasis/PsA, but I totally understand the ongoing, furious determination it takes to keep on trying new treatments while working so hard to live a normal life.
So glad that Stelara is helping! And wishing you the best as you get ready for this ride.
Thank you for reading this blog post. I actually have a study that is paying RA patients $200. You have to participate and its in the state of AZ. let me know if you are interested or if you know anyone that might be interested. contact me at email@example.com
Thank you Wren,
Yes it is frustrating to say the least. We have to be vigilant by being our own advocate. And your spot on about having to be furious with determination.
However, I’m not a willing participant and I want off this rollercoaster.
Good day thanks for the inspiration
I have Psoriasis too
but here in the Philippines
I’m still finding expert dermatologist to
cure my disease. Thank you
i had psoriasis for years and the only thing that helped was phototherapy, which my insurance stopped covering. Out of desperation i tried tried probiotics as i was told that it was a gut thing. After months i had no relief, so i tried Metamucil. I drank a glass of water with a tablespoon of the powder three times a day and after a month or so the patches disappeared. I drink it faithfully everyday and have had no serious flare-ups. If you are diabetic as i am they have it with stevia or you can get Konsyl. This is all psylium fiber with no additives. Tastes awful but it works. Hope this helps. Gwen
Thank you for your advice. How long did it take in order for you to see results?