This is a photo of my leg which is now completely clear from #Cosentyx.  My leg was covered with psoriasis and my joints were horrible.   My nails were pitted and psoriasis was everywhere. 
Now I’m participating in life again and I’m working on securing my future.  Thank you Novartis.  I can do the simple things in life like go food shopping, and go to the beach, or even eat at a restaurant.  I feel healthy once again. Life is Good!  I’m so grateful.  Thank you

                 Overcoming Psoriasis

Thank you Thank you!
Click the link above for our support group

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What a lovely way to be in style and fight for a cure.  If you purchase a shirt money will be Donated to the NPF automatically.  Click on this to participate 》》》 Overcoming Psoriasis 《《《

It’s a win win !

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Who’s LA LA Anthony?  She’s my new best friend.  This young actress has it all.  Now she’s bringing attention to the most prevalent autoimmune disease (with the least amount of funding).  Psoriasis can vary in degrees from mild to severe.  In fact one out every fifty people you know have some degree of the disease.  Thirty percent of those go on to develop psoriatic arthritis.   Some develop psa first.  It’s important to see your doctor for psa because the arthritis can erode your joints and the effects are irreversible.   Psoriasis is misunderstood by the public, it’s not just a skin condition, it’s a serious autoimmune disease that effects the skin organs and joints.  It’s not Contagious in any sense of the word.  Not even blood to blood.
People with psoriasis often feel ashamed and isolate themselves indoors.  Life is a chore and would rather avoid social events.
However many of us with the disease are fighting back.  We won’t let it stand in our way of participating in life.  Like this young actress mentioned here.  Thank you LA LA!

La La Anthony – actress, best selling author, fashion designer and TV personality – has teamed up with NPF to launch the Picture Positivity campaign. She’s telling the world for the first time about her life with psoriasis – and how the disease hasn’t held her back!  Copy and paste link in your browser.

https://Picturepositivity.psoriasis.org/

These two paragraphs are written by a dermatologist.  It’s an excerpt from Cosmopolitan.  It’s two of 14 things she wish she knew before she became a Dermatologist.  The last paragraph is actually factually incorrect.  I would like to address the subject matter but I find it disturbing and if you need to know, I suggest the reader to Google the facts.

This article can be seen in Cosmopolitan.com and is written by Kate Beckham.

It’s better to be honest with patients if you know you can’t help them. Rather than tell people it’s going to be OK when you know it’s not going to get better, just assure them that you will be there to help them manage the disease along the way. Psoriasis, for example, is so common, and there’s a reason it’s referred to as the “heartbreak of psoriasis”: for most people it doesn’t get better. I think just being there to let them know you’re on their side and that you’re going to do whatever you can to make it better is the best thing you can do.

Just because a skin condition might not be life-threatening doesn’t mean your work can’t change lives. I recently had a young woman with one of the worst cases of psoriasis that I’ve ever seen. She had it since she was maybe 8 or 10 years old, and her entire body is covered, and it really affects everything about her life. She had decided to never have children because she never wanted to have a child that had to go through what she went through. When I met her, she was really bad and we had been through so many drugs and nothing seemed to work for her. I called [other experts] and talked to them about different treatment options for her and finally — finally — we have her on a drug and she’s clear. She came in just about two weeks ago and she is a different person. That is really a good feeling, because it is life-changing for her to be able to wear shorts and to be able to wear short sleeves without having to cover up all year.

Terry P. Morris, M.D., Ph.D is a board-certified dermatologist with her own practice in Virgina.

Over the years Hollywood often depict villians with skin irritations.  During biblical times lepers were banished to their own colony.  Psoriasis is a visible disease and society is unaware that it is Not contagious and it’s a serious autoimmune disease.  Often viewed as “just a skin condition.”   Read this comment written by a psoriasis patient in our group Overcoming Psoriasis on Facebook.

Thank you for the add!! It’s very heartwarming knowing that I have a safe haven with you all, I can post pictures & not be ashamed or come here when I’m at my lowest & know that everyone here can empathize with the day to day struggles. I don’t wish anyone to have a disease, but I would cry at night wishing my disease was internal so no one would laugh at me, tease me & make fun of me. Knowing I can come here & have support & encouragement is truly a blessed gift. Thank you all!!

The comment here raises the question are we doing enough to raise awareness.  Are the treatments available effectively treating the disease.  This is the most prevalent autoimmune disease with the least amount of funding.  The National Psoriasis Foundation has done a great job funding research for better treatments.   So much more needs to be done.  Scientists are finally gaining ground and are binding cytokines that cause the inflammation.   Identifying these molecules could lead us to a cure or maybe a vaccine.   We are in exciting times.  I’m looking forward to the day I’m able to report a cure has been found.

Wondering how many of you would be interested in Traveling to the Dead Sea at a third of the price.  I along with Rabbi Andre of NY have met with the Israeli minister of tourism.  We also met with El AL airlines.  The purpose is two-fold, both for healing and tourism.  We are having a pilot program this fall.  We need interested patrons to lock in the price.  The first fifty will be selected to enjoy the historic lands of Israel while staying at the Dead Sea.  My contact information is tvsoccerdad@yahoo.com.
The tour is opened to psoriasis patients and their families along with religious groups.  The travel will be slated for 28 days.  It will include meals, airfare, lodging.  Great opportunity for anyone interested in seeing Israel at a fraction of the price.
 

Raising Awareness about psoriasis and psoriatic arthritis at the Icahn School of Medicine.   Dermatologists from Brazil inquisitive about treatments and our disease state.  Dr. Mark Lebwohl and Dr. Jeffery Weinberg from Mt. Sinai Hospital led the class.  I was honored to be in their presence.  The patient advocates who shared their personal experiences living with the disease, bottom row, Todd Bello , Jo Jo Feder, Christina Tom, and Susan Freeman.  We all belong to the National Psoriasis Foundation which is the largest advocacy group for psoriatic patients.  Www.psoriasis.org

While patients struggle to battle their psoriasis and psoriatic arthritis at home, pharmaceutical companies battle for the best medication in the market place.  What does this mean for the psoriatic?  Well it means better treatments are on the horizon.  It means there is hope for future generations.  It means greater quality of life and less itching and scratching for the psoriasis community. Its a win/win for us patients and the world at large.  Psoriasis and psoriatic arthritis cost tax payers 35 billion dollars in lost wages and disabilities.  People with this disease are often paralyzed in society due to the visible lesions on the skin. The publics misconception is that Psoriasis is “contagious” and “its just a skin condition.”  Recently great efforts have been established to change those false beliefs. I read this article that was publicized by FiercePharma.  I’m delighted, as we all should be, that Pharmaceutical companies are investing billions to find the best medication to treat this disease state.  Here is a excerpt of their article.

“J&J recently completed their Phase III enrollment for guselkumab, putting them in head-to-head competition with a full slate of competitors. One of those rivals is brodalumab, a drug that had wrapped three successful late-stage studies and was cited as a likely blockbuster by AstraZeneca ($AZN). But just as Amgen ($AMGN) and AstraZeneca were prepping their regulatory filings, Amgen decided to drop out of the deal, citing evidence of suicidal thinking in the data that it believes will put the therapy at a competitive disadvantage if it hits the market.

Brodalumab had no trouble beating Stelara in studies, but that’s not the competition that Amgen has in mind. Novartis is already well in front with its IL-17 program for secukinumab, approved in January as Cosentyx , Eli Lilly ($LLY) has also been racking up positive late-stage studies for its IL-17-blocking ixekizumab, trailed by Merck’s ($MRK) MK-3222 and J&J’s guselkumab.”

While pharma competes for market share, the psoriasis patient gains better treatments.  Its a win/win for everyone.  Not only that, society as a whole moves forward by decreasing the revenues needed to subsidize the cost from this debilitating disease.  As a patient advocate I hear from many sufferers around the world.  they are depending on our innovations to improve their lives. This is an example how capitalism does work.  Science will find a cure and many autoimmune diseases will benefit.  Over the twenty four years I struggled with this disease I see the improvements being made.  I’m excited to see what develops in the years ahead.  Feel free to join the conversation at Overcoming Psoriasis and Psoriasis Campaign for a Cure.

Article written by Todd Bello

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