Psoriasis can be Beautiful

“When life gives you Lemons, you make lemonade.”  Sounds so cliche.  This age old adage can help you come to terms with some of life’s unpleasant situations.  Many of us fall into a rut when things take a turn for the worst.  If you look for the opportunity in every situation you can manipulate things into your favor.
The universe is energy, with that said. Think of yourself as a magnet.  If you think negatively or do negative things you will attract negative energy.  So the simple solution to this is to be positive, grateful, and loving.  You will be rewarded ten fold because positive energy pays dividends.  It’s the way the system was designed.  It’s divine.
But how do we change or make a bad situation good?  Well for starters you have to be creative. It must be genuine and truthful.  And it must inspire and motivate others. It must have rack value or what is known as “random act of kindness.”  Remember giving is divine and love is the greatest energy in the Universe.   With that said, I want to introduce to you a very creative individual named Taryn Moon.

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The idea to be a cherry blossom tree popped in my head after a really close girlfriend of mine shared this analogy with me, “You’re like a beautiful flower, and your spots are like your petals falling when you’re under stress” I thought “WOW! my spots do look like flowers, maybe I should be a cherry blossom tree for halloween!”

Taryn was diagnosed at the age of seven and she was in the second grade.  Psoriasis formed after she came down with chickenpox.  Her mother nursed her back to health by eliminating inflammatory foods and feeding her foods loaded in nutrition.   Taryn completely cleared by the 4th grade.  After a series of moves accompanied with stress and some unpleasant situations at school, Taryn’s psoriasis returned.  This time her dad took her to the doctor and I find this most interesting.

 

 

When my Dad took me to see a doctor for it the doctor said, “Oh no it’s such a shame, she’s such a pretty girl” and the adult me gets SO mad at that doctor for framing it that way, but the little girl me heard that and thought that being pretty and having psoriasis were two different things.

 

I asked Taryn if she also has psoriatic arthritis, here is her response.

I don’t believe I do have psoriatic arthritis although my joints pop a lot.  At one point I thought I had carpal tunnel but after starting my diet it subsided.  My hands were really achy at the thumb, especially after polishing wine glasses and silverware (I work in a restaurant)

What treatments have you tried?

As a young girl, treatments were diet, suntanning, and homeopathic.  All throughout high school the treatments were topical and suntanning beds, we tried to do the lightbox therapy through the hospital for awhile but it was a lot to go wait at the doctor for an hour 3 times a week so we stopped going.  Around 21 I was prescribed methotrexate and had clearing with that, but I felt really nauseated on it and was getting sick a lot.  After that I used the eximer laser with success and then got a bill for it 2 years later for $2000.  The hospital and the insurance company had been fighting back and forth about it for that whole time and then ultimately decided that I’d have to pay it.   That was my first major headache with insurance and psoriasis.  About a year before my wedding, I saw a dermatologist who prescribed humira for me.  After a couple months of jumping through insurance hoops, and hours on the phone I got my starter kit.  My psoriasis cleared up almost completely while I was on humira.  About a year in though my husband got dropped from our health insurance because he hadn’t worked enough hours and I was with out  humira for about 6 months I believe.  We picked up new insurance (we worked with an insurance broker to make sure we had a really good pharmaceutical program and are paying SO much for it) and I went back on Humira for about 8 months.  My last humira injection was July 10th of 2014, I made the decision to go off of it and try to heal with lifestyle, diet, and holistic approaches after having a scare visiting my grandfather in the hospital, kissing him and then later finding out he had mrsa.  I had also been sick for 4 months straight through the flu season prior to that and was also starting to consider that I’d like to prepare my body for having a baby.  Right now I’m about a year and 1/2 in to no prescriptions and trying all natural treatments, along with Dr. Pagano’s Healing Psoriasis guidelines.  Most recently I did a parasite cleanse and have actually seen the most improvement since I’ve started this natural journey.
I am not completely opposed to going back on biologics, although I do have resistance around being dependent on any drug because of all the headaches I’ve dealt with on the insurance end and the stress I felt when I couldn’t get my prescriptions refilled.  I want to exhaust all of my natural healing resources first before I go back.  I really want to go the healthiest route, and the trickiest part is I don’t truly know which route that is.  I just try to keep moving forward, and keep taking steps and always choose what feels best for my body

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Psoriasis has had a huge impact on my life, and it has affected me differently at each stage of life.  It had a huge impact on my self confidence, and I think had me hyper-aware of my looks in high school.  I also went through a stage where I was looking for validation that I was beautiful from the attention I could get from men.  At one point I realized it was a valuable tool, that it automatically weeded out the men who only cared about the way I looked.  When my psoriasis went into remission I definitely had a spike in what I call “superficial” confidence.  I felt beautiful for the first time in my life, and I wanted to wear short shorts and backless shirts because my skin was so clear!  My husband was really taken back by my new confidence and would tell me repeatedly how gorgeous I was, and subconsciously I resented the compliment because I felt that it meant that before my skin was clear I wasn’t.  When my psoriasis came back in October of 2014 I was also going through a sugar/gluten detox and I really lost my way for a bit.  I was really depressed, I felt really isolated on my diet because eating out or going for drinks was what my husband and friends and I did for fun.  I became really insecure and jealous any time I saw my husband look at another woman, or tell a friend she looked beautiful.  Hitting a really deep rock bottom for me was my wake up call, and I did some major soul searching.  Through my soul searching, little by little, I found myself and my true worth beyond my skin.  I’ve done so much emotional work, and at one point psoriasis shifted for me.  Now I am so truly grateful to psoriasis and the journey it has taken me on.  I am a faithful person, and I believe everything happens for a reason and psoriasis for me, was no mistake.  I could’ve gotten lost in a superficial layer of life, I was pursuing modeling and could’ve gotten so caught up in my looks as my value but instead I am here, totally confident in myself spots and all.  And I honestly feel more beautiful today, than I felt even when I was clear.  Psoriasis helped me discover how beautiful I am as a person, not as a body.

 

The idea to be a cherry blossom tree popped in my head after a really close girlfriend of mine shared this analogy with me, “You’re like a beautiful flower, and your spots are like your petals falling when you’re under stress”  I thought “WOW! my spots do look like flowers, maybe I should be a cherry blossom tree for halloween!”  I actually had another experience where I lifted my shirt to show someone my spots on my tummy and her response was, “WOW!  They’re beautiful!” After that I was looking in the mirror one day doing my “I’m beautiful” affirmations and it finally clicked for me, “YES I AM!!”   With this shift in perspective I had the confidence to embrace my spots and dress them up rather than hide them.  I have an incredibly talented friend Taylor Gallegos who was happy to paint me so I made the costume myself, and left my tummy open as a canvas.  I was overwhelmed by the response when I walked into the party, most people didn’t even notice my spots until I explained the concept behind the costume to which the response was usually, “WOW that makes it even more beautiful!”  I spent the night talking to a lot of people about psoriasis, from a completely comfortable and empowered space.

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If I could give a newly diagnosed person advice about psoriasis it would be to surrender to the lessons psoriasis is here to bring, to follow its guidance to a healthier lifestyle, and to go within to find confidence.  Having a good support system is really powerful, my husband, friends, and family have been really amazing along the way.  For those who don’t feel they have that in place already, I would encourage them to go on meetup.com to find a support group locally, or reach out online.  None of us are alone in this, 1 in 50 people experience this!  I didn’t realize how many friends of mine actually have it until I became vocal about having it myself.  There’s no sugar coating it, it can be really tough at times but I would recommend a positive attitude overall.  Never give up hope, when you feel hopeless take an action step, do something that empowers you in your journey to healing.
My mantra is, “I have psoriasis AND I’m beautiful.”  Those two things are NOT mutually exclusive.

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Taryn Moon is a member of our support group Overcoming Psoriasis

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#psoriasis #skin #wpd #psoriaticarthritis #arthritis #npf #skin #overcomingpsoriasis #itchy #flakes #California

Watch “Psoriasis Awareness – Bryneenee” on YouTube

New treatments are heading our way from a reliable company.   Phillips has an invention that controls plaque psoriasis with Blue light.  Phillips makes the bulbs that are responsible for Narrow Band UVB.  I’m excited about Blue light because it’s non-evasive and no side effects.  Available only in the UK.  Soon to to be available here in the United States.  Watch the story available below
#psoriasis #skin #health #spoonie #npf #skincare #beauty #chronicpain #chronicillness #chroniclife #awesome #creekyjoints #itchy #itchyfeet #advocates #patientadvocates #wpd #findacure #psoriatic #arthritis #psoriaticarthritis #psa #cure #wegohealth #scalppsoriasis #scalp

Beyond just a Skin Disease

We often go through the motions of life each and every day. Most of us enjoy our health. Some of us are less fortunate. When I watch the news and see teenagers using drugs, “I think why would they gamble with their health?” I went through those invincible stages as a kid. I think many of these bad decisions can be avoided if they only knew others have to fight for their health. Maybe they need to read stories like the one I’m about to share with you.
Layla is a bright young seven year old girl. She enjoyed most of her life growing up and going to school. Her life seemed pretty normal until she was diagnosed with psoriasis and eczema. Her smile and attitude was enduring. She enjoyed dance, her school work, and friends. Like any other seven year old girl life was exciting and fun.

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Today Layla is fighting for her life. Her psoriasis turned into a severe form of pustular psoriasis. She is covered from head to toe. She also has a severe form of Eczema and is now suffering from congestive heart failure. The inflammation of psoriasis interrupts all the functions of the body.
Psoriasis affects 2% of the population. Some 7.5 million Americans. One in every 50 people, which makes it the most prevalent autoimmune disease. Because psoriasis is visible it is often misunderstood. Psoriasis and psoriatic arthritis are not contagious and it’s not just a skin disease. Psoriasis affects the organs and joints as well. Psoriasis is a life threatening disease as you can see here.

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Seven year old Layla is in critical condition and is currently in ICU. Like most of us, Layla didn’t sign up for this disease. Could you imagine being Layla’s parents? I’ve been praying for this young girl. I pray that the doctors figure out the best treatment for her.

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So here is what I’m requesting you do for Layla and her family. First and foremost I’m asking you to be part of our prayer chain. We need devine intervention. Next, we need you to share this blog, this way someone with the resources will be able to help in various ways. Lastly, if you can afford to, please donate whatever you can to help this family.
I first learned of Layla when her mom reached out to me in our support group Overcoming Psoriasis . Our group was already able to provide airfare for the family. I told her I was a volunteer patient advocate with the National Psoriasis Foundation . This Foundation is the largest in the world pertaining to this disease. Many of the new treatments today have been funded by this organization. There is no substitute for their knowledge and professionalism.
Layla’s mom set up a Gofundme page. Some of the more graphic photographs can be seen there. I pray this article is delivered to the right person. I pray you see the urgency of this blog. I’m hoping Layla and her family feels the love and compassion us humans are able to show for one another.
The links are highlighted in the article. Just click them to visit the pages. I wish you, the reader and your family, health and happiness, peace and prosperity. May the spirit of the Holiday season start here by your generous gift. Giving is devine! Love is the most powerful energy on Earth. God Bless!

#devine #psoriasis #skin #health #spoonie #npf #skincare #beauty #chronicpain #chronicillness #chroniclife #awesome #creekyjoints #clearskin #eczema #children #giving #donation #philanthropist #overcomingpsoriasis #love #human #God #amen

Patient or Puppet

Step Therapy is in the News!  Many Patients have been prescribed medications by their doctor only to have the prescription denied by their respective insurance company.  Perhaps we should just make an appointment with our insurance company.  Why see our doctor?  Apparently cost is more important then our health. 
Insurance companies would rather prescribe older less effective treatments.  So they make you jump through hoops to get you the medication originally prescribed.

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California just implemented laws banning Step Therapy.   Leah Howard with the National Psoriasis Foundation has put together a website for us to share our stories.  Www.steptherapyinfo.com
Here are some examples from the site.

Step therapy is supposed to save insurers money. Does it?

In a study comparing spending on schizophrenia medications in Georgia’s Medicaid program, step therapy saved the state $19.62 per member per month. Cheaper drugs – savings all around. Right?

Wrong. The same study found that after the introduction of step therapy, the Medicaid program had to spend more money on outpatient services – $31.59 per member per month. That’s because less-effective meds often led to higher health costs later. 3

Step therapy can be bad for your health

Step therapy can keep people from getting any effective treatment at all. 1, 5-7

Step therapy generates miles of red tape

It takes up to two hours per patient of precious staff time in doctors’ offices to manage requests and appeals – taking critical time away from patient care. 8

Please leave your email and like this article so I can present this to our local officials.   I need to gather as many emails in order to show our support to change the law. 

#psoriasis #skin #health #spoonie #npf #skincare #beauty #chronicpain #chronicillness #chroniclife #awesome #creekyjoints #clearskin #scalppsoriasis #scalp #overcomingpsoriasis #findacure #psoriatic #psa #arthritis #psoriaticarthritis #psoriasisawareness #psoriasisproblems #cure #hair #pain #rash #happiness #wpd15

Step Therapy Campaign

This needs to change and we have the people in place to make it happen.  Scenario:
You go to your doctor and he prescribes the dream medication.  He submits it to your insurance company and they denied it stating you have to prescribe xyz drug before using this medication. 
So I’m thinking, why didn’t I just get an appointment with my insurance company?

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Sounds like they are diluting the doctors ability to be a doctor.  This is pso wrong in every aspect. Well we now have the Avenue to correct it.  Click the link and let’s keep that decision between you and the doctor!
Www.steptherapyinfo.com

#psoriasis #skin #health #spoonie #npf #skincare #beauty #chronicpain #chronicillness #chroniclife #awesome #creekyjoints #psoriasisproblems #cure #hair #scalppsoriasis #scalp #red #pain #rash #happiness #overcomingpsoriasis #findacure #psoriatic #psa #arthritis

COSENTYX SIDE EFFECTS

Todd Bello's avatarOvercoming Psoriasis

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Some of the severe side effects of Cosentyx include:
Many suffer with feelings of joy and happiness.  Sometimes elated feeling encourage you to participate in life.  Beware of wanting to jump in the jacuzzi and swimming in a crowded pool.  Some Cosentyx users actually reported exercising and losing weight.   Experiences also include in rare instances a new wardrobe due to previous condition.  Consult your dance instructor before taking Cosentyx.  The Sudden Urge To Sing outloud could effect your neighbors ears.  Playing with your children due to increased range of motion is very common if this should happen fire your Rheumatologist.
http://www.facebook.com/psowhat

#psoriasis #skin #health #spoonie #npf #skincare #beauty #chronicpain #chronicillness #chroniclife #awesome #psobloggers #Novartis #Cosentyx #psa #clearskin #findacure #psoriatic #psa #arthritis #psoriaticarthritis #psoriasisawareness #psoriasisproblems #cure

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Clearing Psoriasis

I often get emotional when I talk to others about psoriasis and psoriatic arthritis.  I remember being depressed and alone.  Confining myself indoors, to embarrassed to be seen in public.  Nonsense you say, well not to the person who suffers with psoriasis and psoriatic arthritis.  I get emotional because I know the difference.  Today I want to show you the difference.

This is a story about a girl I met a few years ago on my page Overcoming Psoriasis .  Helen told me about her psoriasis but never showed me until today.  For a guy, psoriasis has taken its toll on my self esteem.  I would imagine for a gal it’s ten times worse.  Here is a before picture of Helen’s leg. 

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Helen has a form of psoriasis known as Gutate.  The onset of gutate is usually after a bout of strep throat.  Unlike plaque psoriasis, gutate shows up as many small spots all over the body.  They are for some very itchy, painful, and embarrassing.  What most people don’t understand us that this is just the visible surface symptoms.  The real problem lies well beneath the skin where the damage being done is unseen.  Often psoriatic’s feel tired and pain throughout the body. This is due to the wide range of inflammation affecting the organs an joints.  It wasn’t until recent that scientist’s discovered that psoriasis was actually a autoimmune disease.   Over the years Helen and I discussed treatments.   Because she is from the UK, our options here might not be the same there. 

Luckily for Helen, the medication I’m on became available for her in her country.  We shared a few words this morning about her progress. We also shared a few tears. Tears of happiness.  This is Helen’s leg today. 

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She mentioned how happy she was and that she wanted to show off her gorgeous new skin.  The best part is that this is only after two weeks on the medication.   Let me quote her so you can understand her happiness.  ”

Yeahhh im hoping in a few more weeks it will be completely clear so I can get my legs out for the Christmas parties hahaha”
I assured her that she will be clear.  You see the Difference, not just in appearance but her attitude is one hundred times better.  We psoriasis patients hide… I seen this on Helen’s instagram which sums up how people feel suffering from this insidious disease.

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This photo really says it all.  Now because of these new treatments I can show you Helen in a whole new light. 

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Overcoming Psoriasis

Helen is an active member of our support group Overcoming Psoriasis click the highlighted words to enter our support group. 

#psoriasis #skin #health #spoonie #npf #skincare #beauty #chronicpain #chronicillness #chroniclife #awesome #psobloggers #psoriasissucks #psoriasisproblems #cure #wegohealth #wpd15

Live Interview With Dr. Jackson

As a child I remember loving the site of newly fallen snow.  However the winter wonder land as an adult with psoriasis and psoriatic arthritis can exasperate symptoms.   Before my diagnosis I loved all winter activities.  These days I cringe thinking about the cold weather.  When I was covered from head to toe I had a tough time regulating my body temperature.  

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When I was a fireman/emt I was taught that the body will ultimately protect our vital organs with extreme injury.  If treating a trauma victim we would assist this natural process of the body with a compression suit.  Sort of vassal constriction of the extremities.  My severe psoriasis sort of reminded me of this condition. Even with normal weather my extremities would be freezing.  My health was declining rapidly.  It felt like open abrasions all over my body.  I was losing my battle. 
I had the pleasure to interview Dr. Jackson and a patient Sarah H. from Louisville, Kentucky.   Dr. Jackson was nice enough to explain some of the difficulties psoriasis and psoriatic arthritis patients face during these cold months.  He explains about a relatively new treatment that has been a blessing for those who are prescribed the medication.  
Although this is one of many new medications available,  it’s one that offers treatment for both psoriasis and psoriatic arthritis.   Sarah H. shares her experience on this medication.   I hope you enjoy the interview I conducted. Maybe it’s the answer or control your looking to achieve.   If you haven’t done so already I invite you to our support group Overcoming Psoriasis click the highlighted words for the direct link to the page. 

http://link.brightcove.com/services/player/bcpid82843786001?bckey=AQ~~,AAAAAAHur4I~,diYZRj_HSFq3I0J5u4e4VKgTfmoM3B0i&bctid=4573215442001

#psoriasis #skin #health #spoonie #npf #skincare #beauty #chronicpain #chronicillness #chroniclife #awesome #wpd15 #wegohealth

#WPD15

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Psoriasis and PSA are NOT contagious.

The P maybe silent in psoriasis, but the p in Patient is loud and clear just like our message, Psoriasis is NOT contagious and it’s NOT just a skin disease.  It’s a serious autoimmune disease that affects the organs and the joints causing irreversible damage and can be life threatening if left untreated.  There is no cure and treatments are temporary at best.  New treatments, that are considered safe and effective, are so ridiculously priced you need to be a multimillionaire to afford them.  My mission is clear.  To help research discover new safer and more effective treatments and perhaps a cure.  And to change the publics misconception.  Psoriasis is genetic and you need to be predisposed and when triggered becomes chronic.  The off switch is yet to be discovered.
It affects 7.5 million Americans.  That’s roughly 2% of the population.   That’s one person in a room of fifty.  This makes it the most prevalent autoimmune disease. People with this disease often feel alone and isolate themselves from society. Research has shown that a patient with 3% visible plaques can seriously effect their quality of life.  How is it the most prevalent and the most underfunded?
#psoriasis #skin #health #spoonie #npf #skincare #beauty #chronicpain #chronicillness #chroniclife #WPD15 #wpd15

Let’s get Physical

Do you Diet and Exercise to reduce the impact of your psoriasis and psa?   It might be a good time to start.  I personally try to eat clean and I combine that with portion control.  It’s important to eat foods that are high in nutrition as opposed to empty calories.   With exercise I choose low impact exercises like bike riding and walking.  The less stress on your joints the better.  Swimming is probably the best for low impact exercises.  The idea is to keep moving.  These are lifestyle changes that should be incorporated into your everyday life.  Here’s to a healthier YOU!

#PSORIASIS #skin #health #spoonie #npf #skincare #beauty #chronicpain #chronicillness #chroniclife #awesome #creekyjoints #clearskin #scalppsoriasis #scalp #overcomingpsoriasis #findacure #psoriatic #psa #arthritis #psoriaticarthritis #psoriasisawareness #psoriasisproblems #cure #hair #pain

https://www.yahoo.com/health/6-workout-secrets-that-wont-worsen-psoriasis-165259440.html